Wesley John Leffert, born March 19, 2011, beloved son of Matthew Leffert and Rena Leffert, went home to be with Jesus while lying in the arms of his mother after spending his last days surrounded by family and friends on November 22, 2021. He was 10 years, 8 months & 3 days old.
Wesley was brave beyond words, enduring more in his short life than many of us will in a lifetime.
His strong spirit, infectious excitement, joyful smile, big personality and love of family made a lasting impression on everyone who knew him. He was full of courage and easy to love. A superhero for the ages.
Diagnosed at 4 years old with the genetic disease Mucopolysaccharidosis type 2-Hunter Syndrome, Wesley lived and fought for life with a warrior's heart.
Most of Wesley's care was at home, his favorite place. He received great treatment & medical care at Arkansas Children's Hospital and through Circle of Life Pediatric Hospice & Palliative Care.
Wesley loved spending time with family & friends. Especially visitors & gatherings at home. He loved riding on tractors, lawn mowers and all terrain vehicles.
His favorite sport was basketball & loved shooting hoops. He still loved playing catch or “roll” as his disease progressed.
He loved Thomas the Train, Paw Patrol & Mickey Mouse; all things tractor & train kept him busy. Wesley especially looked forward to car & truck rides from special friends.
Wesley accomplished much in his life experiences.
He was the inspiration behind Wesley's MPS Warriors, and a successful 5K Run & Fun-Walk fundraiser to raise awareness for Hunter Syndrome & help support Wesley's needs.
Wesley and his family were active in the National MPS Society and attended annual conferences.
He rode the Arkansas & Missouri Railroad special Halloween Train for hard of hearing/deaf children.
The Northwest Arkansas Kickball League held a tournament & fundraiser after meeting Wesley and gifted him a trip to Thomas Land in Massachusetts.
Wesley was a Make A Wish recipient of a Polaris Sportsman XP 4-Wheeler, which he rode faithfully in his yard.
He played one season of baseball on the Rays team for Miracle League in Springdale, AR.
He received a Front Row Foundation gift trip and limo ride to see Paw Patrol Live in Springfield, MO.
This year he was the honored guest at a motorcycle 'parade' in Eureka Springs by The Boyz from Illinois motorcycle group.
Wesley is survived by his parents, and sister Ava Margaret;
his grandparents Brian & Paula Leffert and Gary & Maggie Ciocco
and great grandmother Peggy Ciocco.
Aunts Julianne (& Johnny) Hawthorne, Danielle (& JJ) Sanders;
Uncles Andrew (& Gracelynn) Ciocco, and Aaron Ciocco.
Great Uncles Bill (& Christine) Ciocco, John Leffert and David Reininger;
Great Aunts Vicki Wyatt, Peggy Lee DeAngelis, Debra Ciampaglio (& Paul) and Denise Avig (& Charles).
Cousins Crystal (& Aaron) Oatley, Patrick Oatley, Brian Leffert, Ian Hawthorne, Lakyn Hawthorne, Everly Sanders, Charles Gross (& Ellen), Michael Ciampaglio (& Debbie), Danny Ciampaglio (& Rhonda), Lauren Leffert, Elizabeth Atkins (& Michael), Nicholas Avig (& Jen), Joshua Reininger (& Emily), Brandon Gross, Michael Ciampaglio, Ashley Cerny (& Jeremiah Shleupner), Connor Cerny, Drew Cerny, Gabriella Atkins, Kalani Avig, Lauralie Reininger and Daniel Reininger.
Wesley was recently preceded in death by his Great Aunt Sondra Suzanne Reinhardt.
A memorial service for Wesley will be held, Saturday, December 11th at 4 pm.
Living Springs Community Building (Prayer Lake, Kingston-Hwy 74 & Madison 3655)
Address:
188 Madison 3180
Huntsville, AR 72740
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